This is how it felt to bring “real life in America” to the White House
Posted July 25th, 2011 by Gail Schimmelpfennig
Posted Under:
H: Health Care For All Kids
Have you ever felt frustrated with lawmakers who don’t seem to “get it”? Have you ever felt they don’t understand what it’s like to be an ordinary mom with an ordinary family today? You’re probably right. And we need to tell them!
Not long ago, I was lucky enough to be one of three moms selected from across the country to fly to Washington, D.C. to tell my Medicaid story to White House advisors and staffers. I shared how Medicaid literally saved my life by providing treatment for my breast cancer at a very scary time when I had no health insurance. What an amazing experience it was to share my story at the White House! Even the buildings were awe-inspiring. I’ll forever be grateful to MomsRising for making it possible.
One thing I realized is that lots of these powerful “movers and shakers” need to know more about real life in America. Many of them realize it, too. They want to understand how things work. The kinds of questions the White House people asked showed me they wanted a better grasp of my ordinary problems in my ordinary life. Our stories are powerful!
As a writer, I know that if I write about “peace” or “family” or “cancer”, my readers will often feel lost. It’s only when I write about the concrete details, like sitting in the recliner at my oncologist’s office getting ice-cold red chemotherapy drugs squeezed into my arm vein, that my writing connects. Lawmakers are like my readers. They need the details. Details make it live.
And that’s why I encourage you, the real people who are living with all those real details, to find your voice. Together, our stories can show others what matters. They can convince. They may even change the world!
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3 Comments
July 27, 2011 at 10:17 am by EdiYour words ring so true. I never understood how difficult it is financially to raise a child with special health care needs until I started working with the mother of a child with a genetic disorder. (We both work at the Catalyst Center in the Boston University School of Public Health). Like you, she was invited to the White House with two other families to talk with officials about the crucial role that Medicaid plays in her life. Unless I met her, I would never have known how important this program is to her family. And I sure wouldn’t have believed that lawmakers would listen to details about bipap and medications. So I interviewed the families involved in the meeting and put together a video about what they told me–my little bit to change the world, I guess. It’s on youtube at http://www.youtube.com/watch?v=hLA9PgJoOUo . Thanks for sharing your story, and the best of health to you!
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Anita Reply:
July 28th, 2011 at 4:55 pm
Edi, HUGE thanks for sharing the video! It’s also shared on the MomsRising Facebook page: https://www.facebook.com/MomsRising.org
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What an inspiring story. Thank you for sharing, Gail!
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