Magdalena Clark

    For Special Needs Children, the Affordable Care Act is a Godsend

    Posted March 21st, 2011 by

    My name is Magdalena and I am the mother of a beautiful 6-year-old girl named Paloma. Paloma was diagnosed with severe Autism when she was 2-years-old.

    It’s been four years of physical, emotional, and financial struggles. Trying to find the means to provide for the therapies, diets and all medical needs for our daughter has taken a tremendous toll in our family. We constantly struggle fighting the school district since it is incapable of providing what my daughter needs.

    Our private insurance would only cover 20-hour sessions of speech therapy a year! My daughter is non-verbal and 20 hours of speech therapy is sadly a joke. Applied Behavioral Analysis (ABA), which is the only scientifically proven therapy that really helps people with Autism, was not covered at all. It is horrible to know that there are means and ways to help your child, but not being able to give her help is killing us.

    We recently found out that with the new Health Care Reform (Affordable Care Act) we are finally able to provide our daughter with the ABA that she desperately needs. We are so happy. It’s been the first great news we have received in these past 4 years.

    Please, I beg you do not take this away from us. Please do not take the only chance my daughter has to become the best that she can be. ABA can do this for her, but unfortunately we cannot afford it without the help of this Health Care Reform law, or ACA.

    Magdalena Clark is a MomsRising.org member in Houston, Texas, and the proud mother to Paloma and Ulises Clark.

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    1 Comment

    September 26, 2012 at 2:05 am by Victoria S

    http://www.cbs8.com/story/19604621/2-men-accused-of-abusing-autistic-man-plead-not-guilty
    Disturbing video shows two caregivers working different shifts caught slapping, kicking, punching and shoving severely-autistic young man in California. Shows urgent need to reform way states supply families with in home caregivers. And how parents often must take steps to protect their loved ones from abuse by installing video surveillance. There is an epidemic of autism, and thousands of autistic adults are moving into community living settings, and yet few caregivers supplied by state agencies serving disabled are trained to handle autistic individuals with behavioral and health challenges. Laws were passed to bring autistic adults out of state institutions but there is very little being done to offer training or education to caregivers and nurses who work with these autistic adults once they live in community or go back home to live with families. This leaves group homes and families who handle this special population with a limited and often, as seen in this case, not so great pool of caregivers. What’s interesting is nursing and caregiver agencies say they are having a difficult time recruiting people who understand the severely autistic population. Apparently, this is a topic Autism Speaks doesn’t speak about. Nor do the agencies receiving millions to come up with proper supports for autism community.

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